2010

TwoCan Associates for the UKCRC and NCRI (2010) Patient and public involvement (PPI) in research groups – Guidance for Chairs.

Click here to download the Word version of this publication. Click here to download a pdf version of this publication.

2009

Staley K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh. Click here to download this publication.

TwoCan Associates (2009) An evaluation of the process and impact of patient and public involvement in the advisory groups of the UK Clinical Research Collaboration. Final Report. UKCRC: London.
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2008

TwoCan Associates (2008) Getting it right for service users and carers, getting it right for research:  How to decide whether to help researchers find people to take part in research. TwoCan Associates: Hove.
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TwoCan Associates (2008) Scoping research priority setting (and the presence of PPI in priority setting) with UK clinical research organisations and funders. The James Lind Alliance: Oxford.
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2007

McKenzie A and Hanley B. (2009) Consumer and Community Participation in Health and Medical Research. A practical guide for health and medical research organisations. The University of Western Australia and The Telethon Institute for Child Health Research: Australia.
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Buckland S et al. (2007) Public Information Pack. How to get actively involved in NHS, public health and social care research. Booklet 4: Jargon Buster. INVOLVE: Eastleigh.
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2006

Staley K and Minogue V. (2006) User involvement leads to more ethically sound research. Clinical Ethics, 1(2): 95-100.

Hanley B and Staley K. (2006) Yesterday’s Women – the story of RAGE Macmillan: London.
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Staley K and Hanley B. Incapacity benefit and employment – The experiences of people with MS or arthritis. Report for Arthritis Care and the MS Society.
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2005

Hanley B & Staley K. User and Carer Involvement: Sharing our Experience. LMCA: London.
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Hanley B & Staley K. User and Carer Involvement: A Good Practice Guide. LMCA: London.
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Staley K & Hanley B. User and Carer Involvement: How to Develop a Strategy. LMCA: London.
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Hanley B. (for the Toronto Seminar Group) Research as empowerment? Joseph Rowntree Foundation: York.
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Cavill S, Hanley B, et al. Stories that can change your life: communities challenging health inequalities. Department of Health: London.
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TwoCan Associates: Finding out about the priorities of users and making them count: A report for Macmillan Cancer Relief.
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2004

Hanley B et al. Involving the public in NHS, public health and social care research: Briefing Notes for Researchers. INVOLVE: Eastleigh, Hampshire.
Click here to download the INVOLVE guidelines.

TwoCan Associates: A website about clinical trials for patients and the public. (2004).
Click here to view the site.

2002

Pickin C, Popay J, Staley K, Bruce N, Jones C and Gowman N. Promoting organisational capacity to engage with active lay communities: A model to support organisational change for health. Journal of Health Services Research, 7(1):34-42.

Staley K. Voices, values and health. Involving the public in moral decisions. In: Hidden Assets: Values and decision-making in the NHS. (2002) Editors: Bill New and Julia Neuberger. King's Fund: London.

2001

Cayton H & Hanley B. Improving research through consumer involvement. In: Baker M & Kirk S eds. Research & Development for the NHS Radcliffe Medical Press.

Entwistle V & Hanley B. 'Involving Consumers' . In Pencheon D, Guest C, Melzer D & Muir Gray J (eds.) Oxford Handbook of Public Health Practice. Oxford University Press: Oxford.

Hanley B, Truesdale A, Elbourne D, King A and Chalmers I. Involving consumers in designing, conducting and interpreting randomised controlled trials: questionnaire survey. BMJ, 322: 519-523.
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Staley K. Giving your genes to Biobank UK: Questions to ask. GeneWatch UK: Buxton, UK.